
Chronic Advocacy and Resources
I know there are lots of resources throughout the website and features of people who are advocates, but I find Advocacy to be very important so I have the featured people below on other parts of the website.
They are here because they are all advocates and bringing awareness in their own ways to chronic and invisible illnesses.
These people continue to navigate life with their illnesses and are more than just their symptoms.
Resources and Information

MR. ROBOT is a psychological thriller that follows a young programmer who works as a cyber-security engineer by day and a vigilante hacker by night. - usanetwork.com (Warning - Violence, and triggering, but very good show. I had to look away and see the spoilers ahead of time.) Mr. Robot/Elliot has a few mental disorders.
Click on the warrior below to see their bio and link
Warriors also featured on the other pages throughout the site.
See also Vestibular Advocates
More Warriors to come!

You can find her on Facebook, Twitter, Youtube, Pinterest, and Instagram.
Alicia was one of the first people I connected with and she has been so kind and encouraging. She works so hard, and I love her story and vulnerability. She is relatable and strong. Thank you Alicia for being a friend!
Alicia’s VEDA Bio
Hey y’all! I’m Alicia and I was diagnosed with vestibular migraine (MAV) in 2017, a diagnosis that changed my life. I went from being a fun-loving, world-traveling 30 year old to never leaving my house. I was newly married and thought my life was over. It took a few months for me to find the right neuro-otologist and the right treatment plan for me, but in the past 2 years I’ve become stronger than I could have ever imagined. Through the Heal Your Headache diet, vestibular therapy (VRT), key supplements, and ballet, I’m back to living life to it’s fullest. I started The Dizzy Cook, a diet and lifestyle website for those with migraine and vestibular disorders, as well as their family and friends. I share the recipes and tips that have helped me get my life back in the hope that it will help others in some small (or BIG) way!

I connected with him back in March but when he asked me to be a guest on his youtube Vestibular Talk I was honored and nervous at the same time. This was my first experience speaking. He was amazing at guiding my fried brain with questions and I could tell he is such a great person and warrior.
I am so thankful for all he does. He is a vestibular brother in our community! Thank you Johan!
https://www.youtube.com/channel/UCNhI0FlOGsJze1E5K9vwrIA
https://www.instagram.com/find_your_chappiness/

Etta is on instagram and is also a VEDA ambassador.

She is on youtube, and instagram. She also serves on the board of @migraineaus
Laura lives in Karawara, Australia and has had experience with vestibular life herself! In particular, Migraine Associated Vertigo (MAV) and Vestibular Migraine.
Laura's VeDA Bio:
Late 2016 I woke up one morning and life as I knew it was changed. It became a search for answers. I was constantly scared something would happen I couldn't explain nor control. In late 2018; I broke down at the GP and it was there I was handed Generalized Anxiety Disorder. I knew this wasn't it! In early 2019 I came across a physiotherapist who tested me and diagnosed me with Vestibular Migraines -- something I have never heard before. For the first time in almost 3 years I felt like someone finally understood. I went home and googled everything on vestibular; I still remember that night feeling absolutely amazed that everything I felt I was reading right in front of my eyes! I started the road to recovery! I soon got referred to the right type of Neurologist, discovered yoga, and fell in love with wellness. Today I'm living!
https://www.youtube.com/channel/UC2jv40uS76THEjElZCjQILw
https://www.instagram.com/dizzy.diaries/

Em is a Certified Holistic Nutritionist, Vestibular Warrior, mama of two, wife, support to many, and so much more!
Diagnosis: Vestibular Migraine, Vestibular Neuritis
10/31/16 was the day it hit - I felt like I was living on a moving dock, looking at my life from the outside, anxiety coursing through my body. There are no easy words to describe the onset (in my case vestibular neuritis which triggered vestibular migraines). I had just had my second child when it hit and I had to show up, somehow. I held tight onto any improvement and gratitude for slow progress. I believe that you have to advocate for yourself in this battle. I’ve explored both a holistic and western medicine approach, eating a vegan diet, embracing a holistic support system, and working with a holistic doctor and neurologist. Around two years in, with persistence and hope, I felt grounded I believe that I’m a Vestibular Warrior and so are all the beautiful people out there battling their own vestibular something.
https://www.instagram.com/vestibular_warrior/

She is the co-founder of Hope and Hugs (www.hopeandhugsshop.com) which is apparel that is hand-crafted/high quality/comfortable/modern & inspirational for EVERYONE: chronic illness warriors, advocates, family and supporters!
She also recently started a youtube channel and her videos are also so beautiful and raw. Thank you for being a support for me Pamela!
https://www.youtube.com/channel/UCAevE30Vcvi5pQi8VNw_D1A

https://www.instagram.com/_earthtokelsey/
Kelsey’s VEDA Bio:
Diagnosis: Vestibular Migraine
One day I was a normal college student lusting for everything life had to offer me; another day Vestibular Migraine decided to make all of my days dizzy and out me in a brain haze. Grieving your "old" life is normal. Healing isn't easy but it makes you so much stronger and so much more resilient than you think. I never wish for my old life anymore. Fighting to get better and to have a mental clarity is so important. Mental health and vestibular disorders go hand-in-hand. We must not throw in the towel because we are only getting started!

Hemiplegic Migraine, Chronic Migraine, and Infertility journey just to name a few challenges that have made her to be even more of an incredible person. She opened her heart to me and I have felt all the love since then. I know I have her support and I am just so thankful.
She has her own blog on her website and you can find her on instagram as well. She is FULL of resources and information.
She is the co-founder of Hope and Hugs (www.hopeandhugsshop.com) which is apparel that is hand-crafted/high quality/comfortable/modern & inspirational for EVERYONE: chronic illness warriors, advocates, family and supporters!
Thank you Emily for our new friendship and being you!

She also has has long term experience with migraine attacks and vestibular Migraine but only recently has been diagnosed.
You can also find her on instagram @gethealthyhope

DAVID MORRILL, AMBASSADOR CHAIR
Dedham, Maine
Diagnosis: Stroke
My vestibular disorder was caused by a stroke that knocked out the part of the brain that controls balance. During my recovery I found myself struggling with constant dizziness and balance problems. I didn't really know where to turn, until I found VeDA. They helped me understand my disorder with all the information and research they have done through the years. I knew at that time I had to give back, and focused all my energy on helping to educate the public so more could understand this disorder. The following quote sums up my entire mission. If we speak in one voice collectibility we can "Make a Difference."
https://www.instagram.com/dizzy_ambassador/

Audrey has migraine, vestibular migraine, anxiety, IBS, and lives a life of wellness to help her body and soul.
Thank you Audrey for being so kind to me and for our friendship.
https://www.instagram.com/migraine_me/

You can find Amy on youtube at Amy Shockett also!
https://www.youtube.com/channel/UCmomi4vQptvKjJG2wpQKj8g

I first saw her video’s on youtube in April or May of 2020 and I love her awareness and all she does with her awesome service dog Buddy. She’s real and raw about her journey and presents everything in such a creative way. She is currently pregnant with her rainbow baby and she gives me hope that I can be a parent with chronic illnesses someday. Thank you Jen!
You can find Jen on Youtube by searching mumming with migraine, or clock the links below. She is also on Instagram
https://www.instagram.com/mommingwithmigraine/
https://www.youtube.com/channel/UCwhIYF-gzqraW1xYtgi7IRw/videos
https://www.youtube.com/channel/UCwhIYF-gzqraW1xYtgi7IRw/about
Jen’s Bio
Hey guys, welcome to my channel! I'm Jennifer, mom-to-be, and my pup is my service dog, Buddy. I am disabled, but I don't "look" nor "act" sick. It's a confusing grey zone to navigate, but I'm moving forward through life thanks to my optimistic nature and the life-changing medical alerts my service dog provides. On this channel, I'm sharing my tips, spreading awareness, and breaking the stigma by openly sharing what it's really like to live in my strange shoes.
Smiling through chronic complex migraines, dysautonomia, orthostatic hypotension, and Raynaud's.

Gina is the founder of @theprincessandthefog and @self.c.a.r.e.angels
Gina battles
PTSD
Anxiety
Depression
Abuse Trauma
Fibromyalgia
Asthma
High Inflammation
Chronic Sinusitis
Mild OCD
GERD
IBS
Chronic Fatigue and Pain
Mild Raynauds
Benign Joint Hypermobility
Dissociation Symptoms
Migraine
Dizziness
More.

You can find her on instagram at traumagic_journey or her website is below.
She has endured…
Chronic migraine (Aura hemiplegic)
Cluster headaches
Sleep apnea and insomnia chronic neuropathic pain in the entire body
nerve damage
chronic fatigue syndrome hearing and sight decreased with 60%
(C) PTSD
Depression
Anxiety
Body Dysmorphia
PCOS and follicle ruptures causing painful internal bleeding’s rapid weight loss
TMJ
Loss of ability to taste and smell
Trigeminal neuralgia
PIneal paralysis gland brain tumor
A bit more about Renée . . . .
𝕀𝕟𝕥𝕣𝕠𝕕𝕦𝕔𝕚𝕟𝕘 𝕞𝕪𝕤𝕖𝕝𝕗
Hey everyone 👋😀! Welcome to my page “Traumagic Journey”. My name is Renée, 31 years young and I’m born and raised in the south of The Netherlands 🇱🇺.
March 12th 2015 I've been hit by a car 🚗 on a pedestrian crossing, leaving me with lots of issues to deal with on a daily basis. My entire life is disrupted. More about this soon 😊.
My Instagram page -the power of now- will be part my personal diary, advocacy but mainly to share my experiences, knowledge, tips & tricks and fight for awareness for all of us spoonies who've felt/feel unheard or forgotten. I'm hoping 🙌 by sharing my journey I'll be able to inspire and support others in any way possible. I'd like you to know you're NOT ALONE! I'd like to share all the information I came upon as I know you have to be your own advocate 💪, doing your own research 🔍 at all times! I know in most cases it isn't easy to find the info you need as most doctors aren't specialized enough. Nobody will do it for you! Lots of us will experience medical gaslighting or even medical trauma at some point, just like myself.
I feel it's my destiny to share my story in the most raw way, so anyone that has to go through something similar will have a little more info and support to turn to. I'll be having my own website 🌐 in my bio (hopefully soon) where you can read more about me, my trauma, my illnesses and my life. Please bare with me though as I'm having more bad than good days. TY 🤗.
I'm hoping you're doing well and am wishing you all the best throughout your personal journey. Much love, light, strength, positivity and healing vibes 🙏💫💚🍀!
https://linktr.ee/traumagic_journey
https://facialparalysis-synkinesis.jimdofree.com/

She is so kind and hilarious too!
She is a great resource for our community. Please go check out her videos and facts on instagram and her website.
https://www.instagram.com/breakthrutherapyandwellness/
https://breakthrutherapyandwellness.com/

She lives with Vestibular Migraine and is a wellness advocate. She is passionate about her journey and also ditching plastic to live a healthier life, which I love about her!
Kessie is also the founder of Kessie Products and she sells on her Etsy Store.
https://www.etsy.com/ca/shop/KessieProducts
Her blog is coming soon!
You can find Kessie on instagram at
@Kessie_
@Kessieproducts
Her bio below!
Hi! My name is Kessie I am passionate about natural products and how I have used them to support my healing over the past few years.
I have been diagnosed with a condition called Vestibular Migraine after a serious trial with my health. VM is an issue with the nervous system, that causes repeated dizziness. The vestibular system includes the parts of the inner ear and brain that help control my balance and eye movements.

You can find it on Amazon and Kindle!
https://www.amazon.com/Learning-dance-rain-Dizzy-Personality-ebook/dp/B08F73R9TY/ref=sr_1_4?crid=IN5JZQKUE5BO&dchild=1&keywords=learning+to+dance+in+the+rain+book&qid=1598461131&sprefix=learning+to+dance+in+the+rain%2Caps%2C229&sr=8-4
I am so happy for her and proud to call her a new friend.
You can find Georgina on Instagram @dizzypersonalitydizzyhead
and head to her website too!

There are so many amazing things about her! I admire her strength as a mom and wife while living with her pain.
Alicia has been a wonderful person to me. She is so kind and warm. She is validating and that is priceless. Thank you smooch Alicia!
You can find her at …..
Instagram - @mrs_migrainetastic
Some Favorite Videos, Links, and More
After I developed "the party" visual about 3 years back, and shared the vision with a friend and my therapist, I was so in love with this version that Tiffany Jenkins came out with. She gets it!