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I LOVE these advocates and have had the pleasure of getting to know each of them.
Community is important. I was missing out for a long time and I am so glad I decided to challenge my introverted HSP self when I got back on instagram in March. I am currently not active on social media, but have kept the vestibulash page there for people to see resources.
This page is here to show you you are notalone and there ARE people who understand you.
Page Menu below :: Click to skip to section
Click on the warrior below to see their bio and link
Warriors also featured on the Chronic Advocates and Resources page in the Chronic and Invisible Illness Section.
More Warriors to come!
More to Come!
I will be adding videos and other features to this page as time goes on and I continue to meet amazing people!
My first chat as a guest was in May with Johan, who has been spreading awareness in an in credible way.
He is a very positive person who has found purpose in his journey by recording a variety of chats with a variety of people. Check his youtube channel out here.
Check out my nourishing and open chat with fellow vestibular warrior & brother and VeDA Ambassador Johan.
Click on the photo to the left
VESTIBULAR AWareness
Advocates
Johan | Find Your Chappiness Guy | Vestibular Warrior | VEDA Ambassador
Johan is the chappiness guy behind the awesome awareness and positivity he is spreading through his youtube channel and his instagram (@find_your_chappiness). He always lives the vestibular life and he is a VEDA Ambassador!
I connected with him back in March but when he asked me to be a guest on his youtube Vestibular Talk I was honored and nervous at the same time. This was my first experience speaking. He was amazing at guiding my fried brain with questions and I could tell he is such a great person and warrior.
I am so thankful for all he does. He is a vestibular brother in our community! Thank you Johan!
https://www.youtube.com/channel/UCNhI0FlOGsJze1E5K9vwrIA
https://www.instagram.com/find_your_chappiness/
I connected with him back in March but when he asked me to be a guest on his youtube Vestibular Talk I was honored and nervous at the same time. This was my first experience speaking. He was amazing at guiding my fried brain with questions and I could tell he is such a great person and warrior.
I am so thankful for all he does. He is a vestibular brother in our community! Thank you Johan!
https://www.youtube.com/channel/UCNhI0FlOGsJze1E5K9vwrIA
https://www.instagram.com/find_your_chappiness/
Etta | Vestibularguru | Vestibular Migraine and PPPD | VEDA Ambassador
Etta was my first Vestie back in April. I cried when I listened to her podcast through the invisible diaries. She is very real and honest. All it takes is one person to change everything.
Etta is on instagram and is also a VEDA ambassador.
Etta is on instagram and is also a VEDA ambassador.
Alicia | The Dizzy Cook | Vestibular Migraine | VEDA Ambassador
Alicia is known as The Dizzy Cook in our community. She deals with Vestibular Migraine. She is also a VEDA Ambassador. You can read about her journey and see all her Migraine friendly recipes on her website.
You can find her on Facebook, Twitter, Youtube, Pinterest, and Instagram.
Alicia was one of the first people I connected with and she has been so kind and encouraging. She works so hard, and I love her story and vulnerability. She is relatable and strong. Thank you Alicia for being a friend!
Alicia’s VEDA Bio
Hey y’all! I’m Alicia and I was diagnosed with vestibular migraine (MAV) in 2017, a diagnosis that changed my life. I went from being a fun-loving, world-traveling 30 year old to never leaving my house. I was newly married and thought my life was over. It took a few months for me to find the right neuro-otologist and the right treatment plan for me, but in the past 2 years I’ve become stronger than I could have ever imagined. Through the Heal Your Headache diet, vestibular therapy (VRT), key supplements, and ballet, I’m back to living life to it’s fullest. I started The Dizzy Cook, a diet and lifestyle website for those with migraine and vestibular disorders, as well as their family and friends. I share the recipes and tips that have helped me get my life back in the hope that it will help others in some small (or BIG) way!
You can find her on Facebook, Twitter, Youtube, Pinterest, and Instagram.
Alicia was one of the first people I connected with and she has been so kind and encouraging. She works so hard, and I love her story and vulnerability. She is relatable and strong. Thank you Alicia for being a friend!
Alicia’s VEDA Bio
Hey y’all! I’m Alicia and I was diagnosed with vestibular migraine (MAV) in 2017, a diagnosis that changed my life. I went from being a fun-loving, world-traveling 30 year old to never leaving my house. I was newly married and thought my life was over. It took a few months for me to find the right neuro-otologist and the right treatment plan for me, but in the past 2 years I’ve become stronger than I could have ever imagined. Through the Heal Your Headache diet, vestibular therapy (VRT), key supplements, and ballet, I’m back to living life to it’s fullest. I started The Dizzy Cook, a diet and lifestyle website for those with migraine and vestibular disorders, as well as their family and friends. I share the recipes and tips that have helped me get my life back in the hope that it will help others in some small (or BIG) way!
Laura | Dizzy Diaries | Vestibular Migraine | VEDA Ambassador
Laura and I connected and it was like she was born with part of my heart. So empathetic and nurturing. She is acknowledging and affirming. She is very active and passionate about spreading awareness in our community and you can tell within a few seconds of talking to her. I have loved seeing her journey.
She is on youtube, and instagram. She also serves on the board of @migraineaus
Laura lives in Karawara, Australia and has had experience with vestibular life herself! In particular, Migraine Associated Vertigo (MAV) and Vestibular Migraine.
Laura's VeDA Bio:
Late 2016 I woke up one morning and life as I knew it was changed. It became a search for answers. I was constantly scared something would happen I couldn't explain nor control. In late 2018; I broke down at the GP and it was there I was handed Generalized Anxiety Disorder. I knew this wasn't it! In early 2019 I came across a physiotherapist who tested me and diagnosed me with Vestibular Migraines -- something I have never heard before. For the first time in almost 3 years I felt like someone finally understood. I went home and googled everything on vestibular; I still remember that night feeling absolutely amazed that everything I felt I was reading right in front of my eyes! I started the road to recovery! I soon got referred to the right type of Neurologist, discovered yoga, and fell in love with wellness. Today I'm living!
https://www.youtube.com/channel/UC2jv40uS76THEjElZCjQILw
https://www.instagram.com/dizzy.diaries/
She is on youtube, and instagram. She also serves on the board of @migraineaus
Laura lives in Karawara, Australia and has had experience with vestibular life herself! In particular, Migraine Associated Vertigo (MAV) and Vestibular Migraine.
Laura's VeDA Bio:
Late 2016 I woke up one morning and life as I knew it was changed. It became a search for answers. I was constantly scared something would happen I couldn't explain nor control. In late 2018; I broke down at the GP and it was there I was handed Generalized Anxiety Disorder. I knew this wasn't it! In early 2019 I came across a physiotherapist who tested me and diagnosed me with Vestibular Migraines -- something I have never heard before. For the first time in almost 3 years I felt like someone finally understood. I went home and googled everything on vestibular; I still remember that night feeling absolutely amazed that everything I felt I was reading right in front of my eyes! I started the road to recovery! I soon got referred to the right type of Neurologist, discovered yoga, and fell in love with wellness. Today I'm living!
https://www.youtube.com/channel/UC2jv40uS76THEjElZCjQILw
https://www.instagram.com/dizzy.diaries/
Em | Bliss Out Holistic Wellness | VEDA Ambassador | Vestibular Migraine and Vestibular Neuritis
Em is a force and friend to so many. I am so thankful to know her and call her a friend. She has an amazing story, and is just one of the kindest and most supportive people. We co-host Vestibular Warrior Talks together and we are loving it! Thank you Em for all your support in my life and for being someone I look up to.
Em is a Certified Holistic Nutritionist, Vestibular Warrior, mama of two, wife, support to many, and so much more!
Diagnosis: Vestibular Migraine, Vestibular Neuritis
10/31/16 was the day it hit - I felt like I was living on a moving dock, looking at my life from the outside, anxiety coursing through my body. There are no easy words to describe the onset (in my case vestibular neuritis which triggered vestibular migraines). I had just had my second child when it hit and I had to show up, somehow. I held tight onto any improvement and gratitude for slow progress. I believe that you have to advocate for yourself in this battle. I’ve explored both a holistic and western medicine approach, eating a vegan diet, embracing a holistic support system, and working with a holistic doctor and neurologist. Around two years in, with persistence and hope, I felt grounded I believe that I’m a Vestibular Warrior and so are all the beautiful people out there battling their own vestibular something.
https://www.instagram.com/vestibular_warrior/
Em is a Certified Holistic Nutritionist, Vestibular Warrior, mama of two, wife, support to many, and so much more!
Diagnosis: Vestibular Migraine, Vestibular Neuritis
10/31/16 was the day it hit - I felt like I was living on a moving dock, looking at my life from the outside, anxiety coursing through my body. There are no easy words to describe the onset (in my case vestibular neuritis which triggered vestibular migraines). I had just had my second child when it hit and I had to show up, somehow. I held tight onto any improvement and gratitude for slow progress. I believe that you have to advocate for yourself in this battle. I’ve explored both a holistic and western medicine approach, eating a vegan diet, embracing a holistic support system, and working with a holistic doctor and neurologist. Around two years in, with persistence and hope, I felt grounded I believe that I’m a Vestibular Warrior and so are all the beautiful people out there battling their own vestibular something.
https://www.instagram.com/vestibular_warrior/
Pamela | Beauty and The Migraine Beast | Migraine | PCOS | More
Pamela also understands migraine and vestibular symptoms in addition to other challenges like military life, being a mama, Infertility, and PCOS that have made her stronger, and I have had the pleasure of getting to know her. She is so kind, and has a strong head on her shoulders. She has a beautiful vlog, and instagram.
She is the co-founder of Hope and Hugs (www.hopeandhugsshop.com) which is apparel that is hand-crafted/high quality/comfortable/modern & inspirational for EVERYONE: chronic illness warriors, advocates, family and supporters!
She also recently started a youtube channel and her videos are also so beautiful and raw. Thank you for being a support for me Pamela!
https://www.youtube.com/channel/UCAevE30Vcvi5pQi8VNw_D1A
She is the co-founder of Hope and Hugs (www.hopeandhugsshop.com) which is apparel that is hand-crafted/high quality/comfortable/modern & inspirational for EVERYONE: chronic illness warriors, advocates, family and supporters!
She also recently started a youtube channel and her videos are also so beautiful and raw. Thank you for being a support for me Pamela!
https://www.youtube.com/channel/UCAevE30Vcvi5pQi8VNw_D1A
Kelsey | _earthtokelsey | Vestibular Migraine | Advocate and VEDA Ambassador
Kelsey is AMAZING! She is a VEDA ambassador and has vestibular migraine. Thank you Kelsey for being so open and reflective with me and sweet and genuine and so much! So much love for you. Thank you for connecting with me from the beginning and being a real person!
https://www.instagram.com/_earthtokelsey/
Kelsey’s VEDA Bio:
Diagnosis: Vestibular Migraine
One day I was a normal college student lusting for everything life had to offer me; another day Vestibular Migraine decided to make all of my days dizzy and out me in a brain haze. Grieving your "old" life is normal. Healing isn't easy but it makes you so much stronger and so much more resilient than you think. I never wish for my old life anymore. Fighting to get better and to have a mental clarity is so important. Mental health and vestibular disorders go hand-in-hand. We must not throw in the towel because we are only getting started!
https://www.instagram.com/_earthtokelsey/
Kelsey’s VEDA Bio:
Diagnosis: Vestibular Migraine
One day I was a normal college student lusting for everything life had to offer me; another day Vestibular Migraine decided to make all of my days dizzy and out me in a brain haze. Grieving your "old" life is normal. Healing isn't easy but it makes you so much stronger and so much more resilient than you think. I never wish for my old life anymore. Fighting to get better and to have a mental clarity is so important. Mental health and vestibular disorders go hand-in-hand. We must not throw in the towel because we are only getting started!
Emily | modernmigrainemama | Barometric Pressure Migraine | Hemiplegic Migraine | Chronic Migraine | and
Emily is such an encouraging person in our community. She lives with Barometric Pressure Migraine
Hemiplegic Migraine, Chronic Migraine, and Infertility journey just to name a few challenges that have made her to be even more of an incredible person. She opened her heart to me and I have felt all the love since then. I know I have her support and I am just so thankful.
She has her own blog on her website and you can find her on instagram as well. She is FULL of resources and information.
She is the co-founder of Hope and Hugs (www.hopeandhugsshop.com) which is apparel that is hand-crafted/high quality/comfortable/modern & inspirational for EVERYONE: chronic illness warriors, advocates, family and supporters!
Thank you Emily for our new friendship and being you!
Hemiplegic Migraine, Chronic Migraine, and Infertility journey just to name a few challenges that have made her to be even more of an incredible person. She opened her heart to me and I have felt all the love since then. I know I have her support and I am just so thankful.
She has her own blog on her website and you can find her on instagram as well. She is FULL of resources and information.
She is the co-founder of Hope and Hugs (www.hopeandhugsshop.com) which is apparel that is hand-crafted/high quality/comfortable/modern & inspirational for EVERYONE: chronic illness warriors, advocates, family and supporters!
Thank you Emily for our new friendship and being you!
Briar | Migraine New Zealand | Get Healthy Hope | Vestibular Migraine | VEDA Ambassador
Briar is one of the kindest people I have met on social media and I am so thankful for our new friendship. She has started some incredible projects to shake up her country by being an advocate for people everywhere. I love how real she is! Thank you for being a friend to me Briar!
She also has has long term experience with migraine attacks and vestibular Migraine but only recently has been diagnosed.
You can also find her on instagram @gethealthyhope
She also has has long term experience with migraine attacks and vestibular Migraine but only recently has been diagnosed.
You can also find her on instagram @gethealthyhope
David Morrill | VEDA Ambassador Chair | Vestibular Warrior and Advocate
David is a MAJOR support in our community and is story is incredible. He has been so nice to me and supportive personally. Thank you so much David. I am so happy to bee here and thank you for guiding all of us warriors.
DAVID MORRILL, AMBASSADOR CHAIR
Dedham, Maine
Diagnosis: Stroke
My vestibular disorder was caused by a stroke that knocked out the part of the brain that controls balance. During my recovery I found myself struggling with constant dizziness and balance problems. I didn't really know where to turn, until I found VeDA. They helped me understand my disorder with all the information and research they have done through the years. I knew at that time I had to give back, and focused all my energy on helping to educate the public so more could understand this disorder. The following quote sums up my entire mission. If we speak in one voice collectibility we can "Make a Difference."
https://www.instagram.com/dizzy_ambassador/
DAVID MORRILL, AMBASSADOR CHAIR
Dedham, Maine
Diagnosis: Stroke
My vestibular disorder was caused by a stroke that knocked out the part of the brain that controls balance. During my recovery I found myself struggling with constant dizziness and balance problems. I didn't really know where to turn, until I found VeDA. They helped me understand my disorder with all the information and research they have done through the years. I knew at that time I had to give back, and focused all my energy on helping to educate the public so more could understand this disorder. The following quote sums up my entire mission. If we speak in one voice collectibility we can "Make a Difference."
https://www.instagram.com/dizzy_ambassador/
Audrey | Vestibular Migraine, Migraine, Anxiety, and Advocate
Audrey has such a calm and kind soul. I connected with her when I first got on here in April and I could tell right away her heart was genuine. I was comforted by her presence as I was afraid to start speaking out and getting involved.
Audrey has migraine, vestibular migraine, anxiety, IBS, and lives a life of wellness to help her body and soul.
Thank you Audrey for being so kind to me and for our friendship.
https://www.instagram.com/migraine_me/
Audrey has migraine, vestibular migraine, anxiety, IBS, and lives a life of wellness to help her body and soul.
Thank you Audrey for being so kind to me and for our friendship.
https://www.instagram.com/migraine_me/
Amy Shockett | Personal Trainer & VEDA Ambassador & Advocate
I heard about Amy through some of my vestibular girls in our community and I reached out. She has been a great resource and inspiration. I love that she says it like it is, and she works hard on her health despite living with vestibular migraine. Thank you for all you do Amy!
You can find Amy on youtube at Amy Shockett also!
https://www.youtube.com/channel/UCmomi4vQptvKjJG2wpQKj8g
You can find Amy on youtube at Amy Shockett also!
https://www.youtube.com/channel/UCmomi4vQptvKjJG2wpQKj8g
Jen | Mommywithmigraine | chronic complex migraines | dysautonomia | orthostatic hypotension | Raynaud's | Advocate
Jen is AMAZING! Her diagnoses are chronic complex migraines, dysautonomia, orthostatic hypotension, and Raynaud's.
I first saw her video’s on youtube in April or May of 2020 and I love her awareness and all she does with her awesome service dog Buddy. She’s real and raw about her journey and presents everything in such a creative way. She is currently pregnant with her rainbow baby and she gives me hope that I can be a parent with chronic illnesses someday. Thank you Jen!
You can find Jen on Youtube by searching mumming with migraine, or clock the links below. She is also on Instagram
https://www.instagram.com/mommingwithmigraine/
https://www.youtube.com/channel/UCwhIYF-gzqraW1xYtgi7IRw/videos
https://www.youtube.com/channel/UCwhIYF-gzqraW1xYtgi7IRw/about
Jen’s Bio
Hey guys, welcome to my channel! I'm Jennifer, mom-to-be, and my pup is my service dog, Buddy. I am disabled, but I don't "look" nor "act" sick. It's a confusing grey zone to navigate, but I'm moving forward through life thanks to my optimistic nature and the life-changing medical alerts my service dog provides. On this channel, I'm sharing my tips, spreading awareness, and breaking the stigma by openly sharing what it's really like to live in my strange shoes.
Smiling through chronic complex migraines, dysautonomia, orthostatic hypotension, and Raynaud's.
I first saw her video’s on youtube in April or May of 2020 and I love her awareness and all she does with her awesome service dog Buddy. She’s real and raw about her journey and presents everything in such a creative way. She is currently pregnant with her rainbow baby and she gives me hope that I can be a parent with chronic illnesses someday. Thank you Jen!
You can find Jen on Youtube by searching mumming with migraine, or clock the links below. She is also on Instagram
https://www.instagram.com/mommingwithmigraine/
https://www.youtube.com/channel/UCwhIYF-gzqraW1xYtgi7IRw/videos
https://www.youtube.com/channel/UCwhIYF-gzqraW1xYtgi7IRw/about
Jen’s Bio
Hey guys, welcome to my channel! I'm Jennifer, mom-to-be, and my pup is my service dog, Buddy. I am disabled, but I don't "look" nor "act" sick. It's a confusing grey zone to navigate, but I'm moving forward through life thanks to my optimistic nature and the life-changing medical alerts my service dog provides. On this channel, I'm sharing my tips, spreading awareness, and breaking the stigma by openly sharing what it's really like to live in my strange shoes.
Smiling through chronic complex migraines, dysautonomia, orthostatic hypotension, and Raynaud's.
Dr. Sara Andreson PT, DPT, NCS | Migraine Warrior and Advocate | Specializes in Vestibular
Sara LOVES all things vestibular particularly enjoys migraine research and things. She is someone who understand the life of living with migraine. I love how relatable she is and the way she explains medical information os so easy to follow and relate to! She simplifies the information for me I feel like she just gets it!
She is so kind and hilarious too!
She is a great resource for our community. Please go check out her videos and facts on instagram and her website.
https://www.instagram.com/breakthrutherapyandwellness/
https://breakthrutherapyandwellness.com/
She is so kind and hilarious too!
She is a great resource for our community. Please go check out her videos and facts on instagram and her website.
https://www.instagram.com/breakthrutherapyandwellness/
https://breakthrutherapyandwellness.com/
Kessie | Vestibular Migraine Warrior | Advocate and Founder of Kessie Products
Kessie has been a great support to me. She is so genuine and kind. I am grateful for her. Thank you Kessie!
She lives with Vestibular Migraine and is a wellness advocate. She is passionate about her journey and also ditching plastic to live a healthier life, which I love about her!
Kessie is also the founder of Kessie Products and she sells on her Etsy Store.
https://www.etsy.com/ca/shop/KessieProducts
Her blog is coming soon!
You can find Kessie on instagram at
@Kessie_
@Kessieproducts
Her bio below!
Hi! My name is Kessie I am passionate about natural products and how I have used them to support my healing over the past few years.
I have been diagnosed with a condition called Vestibular Migraine after a serious trial with my health. VM is an issue with the nervous system, that causes repeated dizziness. The vestibular system includes the parts of the inner ear and brain that help control my balance and eye movements.
She lives with Vestibular Migraine and is a wellness advocate. She is passionate about her journey and also ditching plastic to live a healthier life, which I love about her!
Kessie is also the founder of Kessie Products and she sells on her Etsy Store.
https://www.etsy.com/ca/shop/KessieProducts
Her blog is coming soon!
You can find Kessie on instagram at
@Kessie_
@Kessieproducts
Her bio below!
Hi! My name is Kessie I am passionate about natural products and how I have used them to support my healing over the past few years.
I have been diagnosed with a condition called Vestibular Migraine after a serious trial with my health. VM is an issue with the nervous system, that causes repeated dizziness. The vestibular system includes the parts of the inner ear and brain that help control my balance and eye movements.
Georgina | PPPD & Vestibular Migraine | Author and Advocate
Georgina is one of those people you meet and you immediately feel like you can be yourself. She is so genuine and kind. Thankful to have met her and to continue to get to know. She just released her first book called Learning to dance in the rain: Dizzy Personality, Dizzy Head.
You can find it on Amazon and Kindle!
https://www.amazon.com/Learning-dance-rain-Dizzy-Personality-ebook/dp/B08F73R9TY/ref=sr_1_4?crid=IN5JZQKUE5BO&dchild=1&keywords=learning+to+dance+in+the+rain+book&qid=1598461131&sprefix=learning+to+dance+in+the+rain%2Caps%2C229&sr=8-4
I am so happy for her and proud to call her a new friend.
You can find Georgina on Instagram @dizzypersonalitydizzyhead
and head to her website too!
https://dizzypersonalitydizzyhead.blogspot.com/
You can find it on Amazon and Kindle!
https://www.amazon.com/Learning-dance-rain-Dizzy-Personality-ebook/dp/B08F73R9TY/ref=sr_1_4?crid=IN5JZQKUE5BO&dchild=1&keywords=learning+to+dance+in+the+rain+book&qid=1598461131&sprefix=learning+to+dance+in+the+rain%2Caps%2C229&sr=8-4
I am so happy for her and proud to call her a new friend.
You can find Georgina on Instagram @dizzypersonalitydizzyhead
and head to her website too!
https://dizzypersonalitydizzyhead.blogspot.com/
Alicia | Undiagnosed Vestibular Migraine, CFS, Chronic Migraine & More!
Alicia has chronic migraine | chronic fatigue syndrome and undiagnosed vestibular migraine
There are so many amazing things about her! I admire her strength as a mom and wife while living with her pain.
Alicia has been a wonderful person to me. She is so kind and warm. She is validating and that is priceless. Thank you smooch Alicia!
You can find her at …..
Instagram - @mrs_migrainetastic
There are so many amazing things about her! I admire her strength as a mom and wife while living with her pain.
Alicia has been a wonderful person to me. She is so kind and warm. She is validating and that is priceless. Thank you smooch Alicia!
You can find her at …..
Instagram - @mrs_migrainetastic
Feaures
Johan
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