After I decided to be brave and override any fearful voices in my head, I jumped on social media in April awkwardly and that was one of the best moves I have ever made.
I have met some incredible people and I have learned from all of them.
Em, Etta, Laura and I started talking in May of 2020 I believe.
We decided we should start recording our chats and rest is history!
We choose topics and just chat about them, which has been so refreshing and nourishing!
Etta is currently living in South Carolina with her husband. Her Vestibular journey started in 2019, but she finds she has had a lot of symptoms occur that make sense leading up to her Vestibular symptoms started.
She is very active in our vestibular community and is currently a new VeDA Ambassador!
Diagnosis: Migraine Associated Vertigo (MAV)/ Vestibular Migraine, Persistent Postural Perceptual Dizziness (PPPD)
I had been having bouts of spontaneous vertigo for a few years, nothing debilitating. On January 5th I collapsed in my home and taken to the ER. They said I was fine. A few weeks later I was diagnosed with vestibular migraine and assumed PPPD. I have never been the same since January 5th, I have symptoms 24/7. I believe there is hope and I will get my life back. Connecting with others in the community has saved my life.
More to Come!
Vestibular Warrior Talks
Meet the Vestibular Warriors
Em is a vestibular warrior! She is the Founder of Bliss Out Holistic Wellness and Plant-Based Holistic Nutritionist in Seattle, WA. She is also a Health Advocate and her mission is to support people in optimizing their health through a whole foods plant-powered diet. She is also a Vestibular Disorders Association Ambassador, a working mama to two sweet boys, a wife, and more!
Diagnosis: Vestibular Migraine, Vestibular Neuritis
10/31/16 was the day it hit - I felt like I was living on a moving dock, looking at my life from the outside, anxiety coursing through my body. There are no easy words to describe the onset (in my case vestibular neuritis which triggered vestibular migraines). I had just had my second child when it hit and I had to show up, somehow. I held tight onto any improvement and gratitude for slow progress. I believe that you have to advocate for yourself in this battle. I’ve explored both a holistic and western medicine approach, eating a vegan diet, embracing a holistic support system, and working with a holistic doctor and neurologist. Around two years in, with persistence and hope, I felt grounded I believe that I’m a Vestibular Warrior and so are all the beautiful people out there battling their own vestibular something.
Laura lives in Karawara, Australia and has had experience with vestibular life herself! In particular, Migraine Associated Vertigo (MAV) and Vestibular Migraine.
Laura's VeDA Bio:
Late 2016 I woke up one morning and life as I knew it was changed. It became a search for answers. I was constantly scared something would happen I couldn't explain nor control. In late 2018; I broke down at the GP and it was there I was handed Generalized Anxiety Disorder. I knew this wasn't it! In early 2019 I came across a physiotherapist who tested me and diagnosed me with Vestibular Migraines -- something I have never heard before. For the first time in almost 3 years I felt like someone finally understood. I went home and googled everything on vestibular; I still remember that night feeling absolutely amazed that everything I felt I was reading right in front of my eyes! I started the road to recovery! I soon got referred to the right type of Neurologist, discovered yoga, and fell in love with wellness. Today I'm living!